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System Overview
About the CHAANZ CHD Registry
With an increasing prevalence of people with Congenital Heart Disease (CHD), combined with a lack of data to characterize the full spectrum of cases and long-term outcomes, there is a critical need to understand the burden of CHD in Australia and New Zealand.
The development of a Regional Registry can generate the knowledge needed to better understand the true diversity of outcomes and burden of the entire spectrum of CHD across the lifespan. This information has the potential to drive policy development for the optimal management of both paediatric and adult patients to achieve better outcomes.
The Registry aims to capture data on patients diagnosed with a congenital heart defect at any age and will be conducted in congenital heart units throughout Australia and New Zealand. It collects data from medical records on epidemiology, CHD history, clinical course, symptoms and burden of disease.
The CHAANZ CHD Registry has been developed by Spot On Software using FileMaker Pro software.
About Spot On Software
Spot On Software, located in Sydney Australia, specialises in developing customised easy-to-use FileMaker solutions for health & business sectors. Our solutions can be accessed by hundreds of users from Mac, PC, iPhone, iPad devices and Web users.
Please see our website for more details or if you wish to discuss your next software project.
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